Hope for 2016

I am sharing this amazing post as part of my last blog post in 2015. This was a fantastic year during which I discovered people like Susan Guzman, Riva Greenberg, and others who share my belief in the power of words. I’m seeing subtle changes in the words people are using related to health, and I’m hearing conversations about the importance of making these changes. The messages we send – as people with diabetes and diabetes care providers – do make a difference.

If you haven’t already done so, please watch the video “You Can’t Eat That!” and join the movement. My hope is that 2016 will be a year of progress and change. I realize it’s a gradual process, but together we can and will move forward.

Happy New Year!

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Flu, Cold, Stomach Bug, Diabetes

The Cleveland Clinic shared a great explanation of the flu (what it is and what it is not). Flu symptoms include fever, aches, chills, and upper respiratory stuff. The major difference between the flu and a cold is that the flu comes on suddenly. Respiratory symptoms without fever means a cold. The flu does not involve nausea, vomiting, and/or diarrhea – those are symptoms of a stomach bug.

People with diabetes can experience wacky blood glucose levels when they get sick. In fact, any illness can lead to serious problems and a higher chance of ending up in the hospital. We can protect ourselves from illness, however, by getting enough and good quality sleep, drinking lots of water, keeping blood glucose levels in a healthy range, and getting a flu shot.

That’s all.

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Diabetes Responses

During the last two Live Interviews I’ve participated in on TuDiabetes, the topic of having “canned responses” has come up. The thought is that we could prepare some responses that are insightful, empowering, educational, supportive, strengths-based, and convey messages about diabetes and how we live with it, to those who may not get it.

This is important for us to think about and do! One response idea that I love, for when someone questions a blood glucose number on our meter, is “That’s diabetes!” I don’t always like to check my blood glucose in front of other people because I’m not always in the mood to explain the number. I realize that the majority of people question because they care, but sometimes I just don’t have the energy. And sometimes the person who is questioning doesn’t really want a full explanation. So something like “That’s diabetes!” would be perfect for those situations.

Emily from TuDiabetes suggested that one of the words we can use more with regard to diabetes is “pride.” It is perfectly appropriate to feel proud of the work we do every day to manage and live well with diabetes. Two of my biggest accomplishments in life were delivering healthy babies – and I feel immense pride when I think about how much work went into those pregnancies!

Another thing Emily said, that resonates with me, is “What people with diabetes do is impressive.” As Diabetes Awareness Month comes to a close, I am thinking about the impressive work that people with diabetes, those who care for them and those who are creating better options and someday a cure, are doing. Until next November, there is a lot to be aware of, and we can continue spreading awareness one person at a time – through messages of strength and hope.

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Diabetes Innovation Is Alive

As we start to wind down November, and Diabetes Awareness Month, I can’t help but once again be impressed by the work that people are doing. My awareness was increased on Friday when I participated in the DiabetesMine Innovation Summit. I will admit it was hard to leave Palo Alto on Saturday, as I didn’t want to lose the level of energy and enthusiasm that I had experienced at this amazing event.

The two most important things I learned on Friday were that 1) there are many (many) people out there who are committed to making diabetes easier to manage until we no longer have to worry about it at all and 2) it is time and there is much support for a movement to “change the conversation” about diabetes. In other words, I’m not the only one out here who is concerned about the messages we send with the words we use around diabetes.

I am very grateful for the opportunity to attend, make connections, learn, and become more aware, and I am inspired by the work that is being done. Thank you to everyone who cares so much about people with diabetes.

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Hypoglycemia Awareness

Another important thing to be aware of – whether or not you have diabetes – is hypoglycemia. Hypoglycemia, or low blood glucose, can be an emergency situation. Those of us with diabetes work hard each day to avoid emergencies, but sometimes they happen anyway. And we appreciate the rest of the world knowing what to do!

I once came upon a man in a mall who was slumped over. Intuition immediately told me he was low. When I approached him a security guard told me he was low but not to worry, they had already given him water. I pulled glucose tablets from my purse and gave them to the man (who was conscious and able to eat). Conveniently there was a pharmacy about ten feet away, so someone went in to get juice.

Water does not raise blood glucose. When someone’s blood glucose level is low, they need glucose – or sugar, or carbohydrate – immediately. Juice (such as orange juice) is a wonderful source of carbohydrate that works very quickly to raise the blood glucose level. Glucose tablets also work well. People use all sorts of different “low treatment” for hypoglycemia. The rule of thumb is 15 gm carbohydrate to raise blood glucose approximately 50 mg/dL, then wait 15 minutes and re-check blood glucose to make sure it’s coming up. If not, treat (eat) again.

Some people don’t feel when they are low. Symptoms of hypoglycemia can vary between people and can even change over time. Ask your loved one with diabetes how they feel when they are low (symptoms) and notice what you see when they are low (signs). They may need your help detecting lows. Worse case, people can pass out or have a seizure when they are low. They can also be unresponsive. In any of these situations – called severe hypoglycemia – it’s dangerous to put anything in their mouth because of the risk of choking. Many people keep glucagon, a treatment for severe low, in the house; otherwise it would be necessary to call for emergency help.

For the safety of those with diabetes, please be aware of the signs, symptoms, and treatments for low blood glucose (hypoglycemia). Here is a resource for hypoglycemia awareness.

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Awareness of diabetes

Today I’m thinking about awareness of diabetes, itself. Did you know there are 29.1 million people in the United States with diabetes? That’s one out of every ten adults. And about 8 million of them don’t even know they have it! Another 86 million people have pre-diabetes, which means they have a very high risk of developing type 2 diabetes. In the meantime, pre-diabetes still puts people at risk for things like heart disease.

Diabetes Awareness Month (November) is a good time to get checked for diabetes if you haven’t already. Get a fasting blood glucose checked yearly if you are older than 45, have a family history of diabetes, if you have high blood pressure or high cholesterol, had gestational diabetes or gave birth to a large baby (over 9 pounds), carry extra weight (especially if you carry it around your middle), or if you are Asian American, Hispanic/Latino American, African American, or Native American/Native Alaskan. These are all risk factors for type 2 diabetes.

Awareness includes finding out if you have or are at risk for diabetes. Knowing your diabetes risk can help you make changes to lower your risk. And if you have diabetes and don’t know it, finding out can help you take steps to prevent problems down the road. Awareness, like knowledge, is power!

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Diabetes Awareness Month Week 1

November is Diabetes Awareness Month, and I like to emphasize awareness. This time of year I am especially aware of the benefit of a flu shot. People with diabetes have a greater chance of being hospitalized if they get the flu. Illness typically causes elevated blood glucose, which on top of having the flu can be not fun.

I don’t want to get the flu at all, let alone have to be hospitalized. Who has time for that? I got my flu shot two weeks ago today and feel good that I’m protected for another year. By getting a flu shot I’m also protecting others. If you have diabetes, please consider getting a flu shot.

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Kids and Healthy Eating Habits

Interesting article about kids and snacks. I am always amazed and impressed with my own kids’ ability to eat when they’re hungry and stop when they’re full. I encourage this by offering healthy meals/snacks as much as possible, making no foods “off limits,” and not forcing them to “clean their plates.” My hope for them is a normal relationship with food throughout life. I think this applies to kids with or without diabetes.

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Another Diabetes Innovation Opportunity

Innovation Project Icon - DiabetesMine 2015You have yet another chance to share your ideas for diabetes innovation. Check out the DiabetesMine Usability Innovation Awards. You can nominate an innovation (not drug) that has helped make managing diabetes easier/more successful for you – wouldn’t you love to see it win? The link to submit a nomination is included on this page. The innovation can be from “diabetes drug or device makers, doctors’ offices/clinics/hospitals, pharmacies, insurers, software companies, individuals, anyone really.” This is your chance to acknowledge an innovation that has helped your diabetes life. Have fun!

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Reinvent your (diabetes) life

Change is difficult. Not changing is fatal.

Are you willing to try something new? Are you willing to fail in the process?

Diabetes is no different from any other aspect of life when it comes to trying and failing. (In fact, I had a high school teacher who said that trying is failing and we just have to do.) So to reword the first question – are you willing to do something new or different? Are you willing to change?

When I was a nurse at diabetes camp, many parents gave me a hard time about the lancets or other equipment we had at camp. They said their child was used to only one way of doing things. It turns out that kids are adaptable and can use all sorts of different equipment – and have fun!

Every day we have an opportunity to start over, do something different, change the way we look at or respond to things, and find new successes. If something isn’t working – find a way to change it. My friend, Todd, calls this reinvention. He says that to invent is to be alive. What are we waiting for? What is one thing we can change today that will help us truly live?

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