Diabetes and New Beginnings

Today’s prompt for Health Activist Writer’s Month Challenge Day 5 is ekphrasis, which is the Greek word for “writing about art” (I had to look it up). Here is the image I’m supposed to write about:

Magnolias .... by ****** Janet 1311 ******

To me, this image represents new life. In biology class many moons ago, I learned about terminal buds – those pointy buds that grow at the very tips or ends of branches. This image reminds me of how each spring nature gets to start over. This can happen with diabetes management too.

Sometimes we set new goals, maybe New Year’s Resolutions, where we toss aside old habits that may have gotten a little out of control. We enter a “new beginning” in terms of taking medications more consistently, exercising more frequently or with more intensity, making healthier food choices or cutting certain foods out of our eating plan, and so on.

New beginnings are refreshing, motivating, and can even inspire us to make changes that stick for the long-haul. Heidi Grant Halvorson, who has written an entire book about goal-setting, says to set specific and difficult goals. We need to figure out if we are working on a why goal (motivation toward something bigger) or a what goal (just getting through a difficult task).

New beginnings in diabetes management (or anything else) can happen any time. For several nights in a row this week I was eating a snack that was causing me to wake up with a high blood glucose level the next morning. Last night I tried not eating anything before bed and I woke up right in my target range.

What’s your new beginning?

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Too Much Diabetes

Today is Day 4 of the Health Activist Writer’s Month Challenge: discuss why I write about my health.

I write about not just my health, but diabetes in general because I feel called to do that. Sort of. Sometimes I really wonder about this whole blog thing. I admit it’s a great outlet. When something comes up in my day that blatantly relates to diabetes, I enjoy writing about it. Other times, I’m really not sure what to write about, yet I feel I am supposed to write something (those posts are probably obvious to readers).

As a person with diabetes and a diabetes professional, I get caught in the middle. It sometimes seems I share too much to be professional, but not enough to be personal. I like to share what works for me in hopes that it will help someone else, yet I recognize that everyone is different and has different needs. I also feel compelled to teach, since I am diabetes educator, but I don’t want posts to seem too educational.

Sometimes living with diabetes, working with diabetes, and writing about diabetes is just too much diabetes. I love having all these prompts this month, because, honestly, I don’t have to think so much. Even though it involves blogging more frequently (every day for a month), it actually feels like a break for me.

Anyway, I write about diabetes because it’s what I know. They’re always saying, “write about what you know,” afterall. I like to share things that inspire me and things I find humorous. It’s nice that a blog is informal and doesn’t require references (hyperlinks are nice, though). It’s just a good way to air my thoughts, stories and feelings without having to pay someone to listen, I guess.

There you have it.

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Diabetes Superpower

If I had a superpower I would add more time to the weekend days. Or wherever more time was needed. I have found, since working fulltime, that I do not have enough time on the weekends to get everything done that I would like to. I also find I don’t have as much time for sleeping as I would like.

Sleep is critical to taking care of diabetes. Lack of sleep can lead to high glucose and high (or low) glucose can lead to lack of sleep. Lack of sleep can also lead to crankiness and low productivity. I would definitely use some of that extra time to sleep a little more.

Diabetes tasks take extra time. Even though the blood glucose meters we have now are quick, it still takes time. Changing pump infusion sets takes time, as does drawing up and injecting insulin and/or taking pills. All the appointments with health care providers take time. So it would be nice to have extra time for all this, and not have to cut into my life.

My diabetes superpower would be to add time, here and there, where I need it for sleep or diabetes tasks. I hope I wouldn’t abuse it, because too much extra time could probably have bad effects on the earth’s calendar or rotation, or something.

What would your superpower be?

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Quote for Diabetes

There are several quotes that inspire me. Today I’m thinking about this quote:

“Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow’.” Mary Anne Rademacher

This quote is a wonderful reminder that, as humans, we are not perfect. When we make mistakes we get to start over, try again, keep working on it. I joined a workout class four months ago. Some of the things that were hard for me four months ago are easier now, while many things are still nearly impossible (for example, anything involving upper body strength). I like to say I have many things to work toward in there, and that keeps me motivated and gives me the courage to keep showing up.

Beating ourselves up for missing a blood glucose check or a medication dose or an exercise session, or feeling bad/guilty about something we ate doesn’t accomplish anything. Courage is moving past those dips, correcting them whenever possible, and making different choices next time.

What have you been courageous about lately?

 

 

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Time Capsule for Diabetes

Today is the first day of the Health Activist Writer’s Month Challenge. Today’s prompt is to write about a health time capsule. If I had to create a time capsule for diabetes, which wouldn’t be opened until 2112, it would contain a few of the blood glucose meters we currently use. It would also have samples of the insulin pumps that are available today, along with continuous glucose monitoring (CGM) devices.

I would include printouts of some of the blog posts from the Diabetes Online Community and a list of the major organizations that support people with diabetes. A couple videos about diabetes camps and other programs for kids and adults with diabetes would be in there too.

As far as what the folks who open the time capsule would say when they see this stuff, that is easy. They would simply say: “What the heck is diabetes?”

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Diabetes Money

What would you do with $640 million? I realize the winner of the Mega Millions doesn’t get ALL of that, but hey, let’s have fun with this! What would you give to diabetes?

I would give a chunk to diabetes camps everywhere, and I would do it by donating to the Diabetes Education and Camping Association (DECA), and letting them distribute it. I would also give to the American Association of Diabetes Educators (AADE) and the American Diabetes Association (ADA), to support the work of diabetes programs and diabetes health professionals. I would provide scholarship for students to attend the Master of Science program at Teachers College Columbia University. I would give to the Diabetes Hands Foundation to support diabetes social media. All of these donations would keep programs funded while we wait (only a little longer) for a prevention and cure. I would also donate to the International Diabetes Foundation (IDF) to maintain and promote awareness, so everyone hears about the cure when it happens!

I would give to the Charles Ray III Foundation so that everyone who wants one, can have an insulin pump during the waiting period.

I would give to The Academy of Nutrition and Dietetics because they promote good health through nutrition, and that will always be an important message – even when diabetes is no more.

I would contribute generously to the Juvenile Diabetes Research Foundation (JDRF), ADA, Barbara Davis Center, Joslin Diabetes Center, International Diabetes Center (IDC), National Institutes of Health (NIH), and Robert Wood Johnson Foundation to support the research that will finally determine the cure for diabetes.

I realize there are countless other organizations, and that is why you get to chime in now and share them with us! Where would you give your diabetes money?

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The Scary Side of Diabetes

I just found out that a member of the diabetes family died yesterday. People die every day, but when it’s someone you know, it changes things. A friend put it perfectly: hearing that someone died, even though we don’t know the details yet, makes it feel like a set-back for everyone with diabetes.

I am constantly talking and writing about having a positive attitude and seeking balance. My intent is never to make it sound easy, because we all know it isn’t. Diabetes requires a lot of thought, commitment, and effort. Diabetes is not easy. Having a positive attitude just makes it a little easier to deal with diabetes.

It’s scary to live with a disease that can cause dreadful complications and even death. It’s important to respect the seriousness of the disease, yet not take things too seriously – if that makes any sense. Today I’m thinking about everyone out there who is living with diabetes.

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Where are you with your diabetes?

Tudiabetes is turning five this year. A blog prompt from tudiabetes is as follows: Reflect on where you were the year TuDiabetes began (2007) and where you are now.

My initial response was “no difference” in terms of my relationship with diabetes, what I’ve learned, and what I’ve done. But that’s not really true. Can five years really go by in a life without a person moving, growing, gaining some sort of insight, or changing in at least some small way?

In 2007 I was fresh off my second insulin pump (due to atrophy), and probably still adjusting to multiple daily injections. I was taking Lantus once a day at bedtime and NovoLog with meals. I would take my NovoLog just before eating or even partway into the meal. My kids were 6 and 5 years old at the time and kept me busy!

Now I’m taking some of my Lantus dose in the morning and the rest at bedtime, which gives me better round-the-clock coverage. I heard about the research showing that taking rapid-acting insulin 15 minutes before meals lowers A1C and I consistently do this now (I actually titrate the time according to my blood glucose – if I’m low I only take it about 5 minutes before eating, if I’m in range I take it 15 minutes before, and if I’m high I take it 20 or even 30 minutes before).

The biggest shocker to me is that I started a (pretty intense) workout class. I have always hated exercising with a group, yet now I’m doing it and even enjoying it (it helps that everyone else is suffering as much as I am and there are no mirrors).

How have things changed for you in the past five years?

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Diabetes Tricks

There’s a lot to do to manage a disease like diabetes – check blood glucose, take meds, exercise, make healthy food choices, and so on. Just when you think you’ve got it down, something changes (this is true for many things in life).

I took Lantus once a day (before bed) for years. When I started taking Lantus I was coming off of wearing an insulin pump for years, so I often forgot my bedtime dose. Just when I got it down, and pretty much never forgot that evening injection, I made a change to taking some of my Lantus in the morning (it turns out that our “24-hour insulin” really only lasts about 20ish hours, so many people need to split the dose for maximum coverage).

As you can imagine, I forgot the morning dose more often than I remembered it, so I had to come up with a “trick.” I keep my Lantus in a little basket on my bathroom counter (insulin that is currently being used does not need to be in the refrigerator). I started putting the Lantus vial on the counter after my bedtime dose, so I would see it in the morning. This little trick has helped tremendously and I no longer forget the morning dose.

What little tricks have you developed to help you remember all the diabetes tasks you need to do each day?

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Diabetes Promise

It’s encouraging to find other people writing about positive attitudes. The other day I read a blog post entitled, What is your Promise? The writer mentions Chad Hymas, who I have had the pleasure of hearing speak and meeting – and he is truly an inspiration.

Of course this got me thinking about what I promise to do in my life – what is my legacy? At what point in life do we start having this conversation with ourselves? It’s never too soon, really. The first thing that popped into my mind was, “lead by example.” (Those could be my three words.) That’s a hard thing to do on a consistent basis, since I’m human and I make plenty of mistakes. But I will certainly keep working on it, and maybe more and more times I’ll get it right.

I think the most important thing to me is to stay positive and to approach situations, people, and life from a positive angle. I think asking ourselves this question – what is your promise? – is the same thing as figuring out what motivates us. Once we know what motivates us, we can be inspired to get things done, to stay on track. The only slight difference is that our promise goes out to others, while motivation serves ourselves. In order to truly succeed, we need intrinsic motivation, in other words, taking care of our diabetes for ourselves, not for somebody else.

At any rate, what is the first thing you think of as your promise – what will be your legacy?

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